The following was written by a friend of mine who is going through recurrent pregnancy loss. She’s looking for advice on potential next steps for determining why they keep enduring this pain and heartache. ❤
We first started trying in January 2015, and right away in March 2015 received a positive pregnancy test. SUPER excited so we told our immediate family right away! So now we sat and waited for 12 weeks to come so the doctor would do more blood work and an ultrasound. At 10 weeks had some spotting so we immediately went to the doctor and he looked at our HCG numbers and they were low (1700) – sadly he said we would lose this one. We watched these numbers fade over the next week. Two weeks of a natural miscarriage was the WORST thing I had to experience! A long emotional two weeks, feeling like I was the cause of everything, the let-down of family that we had told. I sat there feeling so helpless and questioned why us?
Growing up I always received the question, “what do you want to be when you grow up?”. I always answered “a mom” . I wasn’t going to let the one miscarriage let me down! I had been advised by family and friends that it happens often a miscarriage. So, we decided to try again. That in itself is a challenge putting yourself out there again for it to happen again and the fear is unremarkable! Well we started trying and got pregnant again in September, 2015! I was hopeful that this was our baby ☺. Well once again at about 7 weeks I started having some bleeding again. Your heart breaks because you know exactly the outcome this will have! We spoke to our family doctor and decided to take Misoprostol which made it hard at first but it wasn’t the 2 weeks like before! We also at this time decided to look at my thyroid numbers as mentioned from a friend and yes they were high (having normal all my life- I always checked as my mom and sister had issues I knew I was at risk too !)
Our family doctor decided to send us to an OBGYN. Within a few weeks we were in his office wondering why us and what can we do to change these outcomes? We brought it to the OBGYN attention that I had a positive ANA blood test. I have been diagnosed with Raynaud’s which causes issues with my circulation. He also did some blood clotting test on me and it came back clean. We did chromosomal on myself and my partner and they came back clean as well. So he started us on daily Asprin and sent us on our way. Once we received a positive we were to immediately start progesterone and do some blood work. Soo…now we face that fear of trying again.
Aspirin made me feel great! I suffered a lot of years of migraines and headaches- NOTHING with the aspirin maybe a few days that usually stemmed from me crying due to the emotions and fear of all this pain and unanswered questions.
We decided we were ready and hopeful that this aspirin made such a difference that it was maybe indeed the answer we were looking for! One simple pill made the world of a difference in how I felt. We decided to start trying and got a positive pregnancy test in February 2016 (I was on aspirin for 100 days now). I was terrified to see the double lines….3 pregnancy tests later ok…..this was real. So immediately that day we got the pregnancy blood work, started progesterone, and headed to the doctor that evening. Our HCG was 71- wow we caught this one early ☺ My thyroid was up to 8.3 so the next day we started 50 snythroid daily. I did the Antibody screen and it was negative. All my blood work seemed to be “normal” as he didn’t see any more concerns.
One week later, we did another HCG and we were up to 3241! That’s the highest we have EVER been fantastic! I felt great, I was so positive that we had an answer! We did routine doctor visits every 2 weeks where he had a small hand held ultrasound machine. He couldn’t see much because it was so small, but there was something there! So he sent us for an ultrasound at 7 weeks 1 day – there was our little bean growing! A heart beat of 155- OHHH its sticking around! We got our first picture and headed out of that office with the BIGGEST smile on our faces. This was amazing the feeling of having a picture and a confirmed heart beat! It does say on our report that I have a “mildly sub septate” uterus. Our OBGYN didn’t seem to worry about this.
He redid my thyroid blood work and it was still slightly elevated at 4.4 so twice a week I had to take two doses of synthroid (which would be 100) on these days. I still felt great but always had a fear inside of me that something would happen. After 2 losses, I just had a hard time being positive and loosing that fear inside of me.
Routine appointment was on March 23rd which was about 10 weeks (10.43 to be exact) so I was down in my slump feeling worried and needs some reassurance that it was fine! So I go in and he does the routine how do you feel? Any bleeding or spotting? Blood pressure check and then the ultrasound with his hand held. He always said it wasn’t a fantastic machine to see small early pregnancies but he sat there and moved it and moved it and moved it……I began to worry. But he said “I’m sure its fine” and decided to send me for a ultrasound, one block away and 1 hour later I was in the ultrasound room….
The ultrasound tech did the ultrasound and left the room…I’ve been here before and knew it wasn’t good. Yup the worst has happened. We were told that it stopped growing shortly after the previous ultrasound. Immediately back to the doctor we go…..we had to stop aspirin and progesterone immediately and decide on our options. We waited the weekend and tried to spend it with family as it was Easter. I started having some bleeding and decided to do the Misoprostol. The first day two days I was instructed to collect any tissue or items that I passed to be sent away. I sent this away the next day, have yet to know of any outcomes. Our OBGYN suggested we try heparin shots next in a hope that it might work.
Here I sit…wondering what more answers can I find? What tests should I push for? I have heard of testing for APA blood work- symptoms I have that might work are arthritis feeling, ongoing headaches, upper body discomfort. Online it says you are at higher risk of miscarriage. Check the blood flow into my Uterus? NK cells ?
- Raynaud’s Disease
- Positive for ANA cells
- 3 losses – March 2015, September 2015, February 2016
- Elevated Thyroid levels once pregnancy confirmed
- Last protocol under guidance of OB/GYN: Asprin, Progesterone, Synthroid (100 mg twice/week)